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Ed Caffrey's Workshop Talk to Ed Caffrey ... The Montana Bladesmith! Tips, tricks and more from an ABS Mastersmith.

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Old 06-13-2013, 05:11 PM
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Update from the Mayo Clinic

Had my appt at the Mayo yesterday. The Doc did a complete exam......and I mean a COMPLETE exam. Then it was to the lab for bloodwork.....that came back this morning. So far it shows my lipase is very high, blood protien is high, along with IGG1 and IGG3 (but I have no idea what that means.
The Doc said that she suspects something called IGG4, but could not be sure until all the tests come back. Next up is a complete PET scan tomorrow afternoon, then we fly back home on Saturday morning.

The Doc said she would call me with her results and recommendations around the 25th of the month.

No answers yet, but hopefully between all the tests ordered by the Mayo Doc, and the PET scan, they can figure this thing out and get me back on the road to "being me again."


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Old 06-13-2013, 05:19 PM
cdent cdent is offline
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Thanks for the update Ed. All ways have you folks in mind. I guess not enough time for a little walleye fishing.

Sorry about that, Craig
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Old 06-13-2013, 06:32 PM
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Thanks Ed, Been thinking about you all day. Keep the faith that they will get to the bottom of all this.

Bing


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Old 06-13-2013, 06:43 PM
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Thanks Ed, been checking the puter every day to see if you have learned anything. Hope they do come up with some answers and above all a healing treatment.


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Old 06-13-2013, 09:22 PM
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Thanks for the update Ed, we've kept you both in our prayers. Safe travels.

Julie


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Old 06-13-2013, 10:25 PM
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Just typical of you to try to catch some weird disease instead of just breaking something normal!

I know first hand that it's no fun getting poked-and-prodded, but let's hope they can get you on track soon.

As always, you're in our prayers, amigo.


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Old 06-16-2013, 08:32 AM
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Yep.....I can never be "normal".....

We got back home yesterday around noon. Now the waiting game continues for the test results and the Mayo Doc's recommendation(s).

She says she will call me on or about the 25th. From what information I've gotten to this point, I suspect I'll be going back for more evaluation.

In the mean time, I'm gona do what I can, when I can, and just keep chugging along.

I'll keep everyone updated here on the forums things progress. Thanks to all my knife Pals here for your support and prayers! I love all of you!!


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Old 06-16-2013, 08:47 AM
Doug Adams Doug Adams is offline
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Hey Ed,
It was good to see you at the blade show. glad you made it out to the mayo clinic. still praying for a complete recovery. hang tuff brother.
Doug Adams
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Old 06-16-2013, 11:17 AM
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Ed Glad to hear you're getting somewhere with this Keeping fingers crossed.


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Old 06-16-2013, 01:00 PM
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I know what you are going through Ed , I am in the Specialist phase of my Doc's and trying to figure out what is going on/wrong with me as well . I too have a ton of holes in me and yet another Batch ( 4 Doc's ) now need blood work with more acronyms then the Army has or uses ! I am sure there are well over 50 + blood test they are all ordering and all different . the best part about it is I am going one place to have One very small needle poked into me and they are drawing the blood work for all 4 doc's blood work . hopefully they will Find out just what is going on with my body and issues . as this has been a very long battle as well like yours mine has been a problem as of 1999 and getting progressively worse for years now.

Prayers and Best Regards to You and your Family

Live well and Live Happy Brother Ed

Sam


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Old 06-16-2013, 10:14 PM
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Thanks Sam....same from me to you....will be keeping you in prayer! My hat's off to ya....I've only been chasing this thing around for about 18 months....and there are times when I hurt so badly, that I just wanna lie down and die....but your battle has been MUCH longer then mine.....and I have to believe that your post is Devine Intervention......cause it was just what I needed to hear, right when I needed to hear it.

Thanks Brother!!


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Old 06-18-2013, 04:21 PM
hbarncraftworks hbarncraftworks is offline
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I just joined the forum a couple of days ago and just read your post. I hear ya brother.

I have been battling odd symptoms for 4 yrs. and have gone through a jazillion tests. Last month I received two bits of news: I have Multiple Sclerosis and prostate cancer. I will tell you that knowing what is going on is a helluva lot better than not knowing.

I know what waiting for test results feels like and will be thinking of you. Also, Billings Clinic is hooked up directly to Mayo Clinic now, and wouldn't be as far from home if that's an option.

Take care.
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Old 06-18-2013, 10:54 PM
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Well Brother Ed I have been on here for some time reading a ton of threads and your story i really did not know what to tell you or say I know when you are in pain it is hard to get up an do anything , often it turns to anger and we take it out on our love ones before we think . I did get one result back just last week and it is positive for Lupus happy go lucky for me. I will not let that get me down as the good lord is not finished with me just yet as for the rest of the results I am still waiting Brother we live one day at a time and are blessed every day when we wake and are breathing and get to see our children ,or at least I think I am blessed in that manner the good Lord blessed me when he let my oldest girl live past 18 months old and survive Cancer and make it to age 16 now she has been in remission for 7 years now i also have a beautiful 7 year old also .

I survived 25 years in the Military (Army) many tours and to many injuries to just give up and not watch my youngens grow up. if I wanted too I would have given up long ago when things first got the worst and as you say I could have just died and it would have been very easy back then . yet I chose to live and I am glad I did I met you and am thankful for that your work is an inspiration for me to work toward in my knife making skills .

Blessings And prayers to you and your Family Brother Ed
Keep Living and Keep Living Well !

Your Brother In Christ

Sam


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Old 06-20-2013, 09:53 PM
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The thing about some of these diseases - like cancer, for example - is that they not only want to kill you, they want to take your life and your soul as well. They want to make you walk away from loved ones and doing things that you enjoy. They want to make you sit and hope for death. They can take you into a black place and they can take you there much faster than you might imagine.

Every day is an opportunity to do something right. To affect someone else's life. To make a difference. To love your friends and family. To try to beat the beast that is choking your life.

I just finished chemo for pancreatic cancer. I've been in those dark places. Right now I'm trying to help a friend who is going through the same disease, but may be too far along. (Recovery rate for pancreatic cancer is about 6% and it hasn't improved in 30 years.) It is a physical, spiritual, emotional, and mental struggle. I don't know how an atheist could deal with it all, to be honest. But no matter how hard the physical struggle may be, the mental struggle is harder by orders of magnitude. That's where the battle is won or lost.

God made life short so that we would appreciate the time we have with our friends and family. Do whatever you can to live for that and not let the disease take it away.


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Old 06-21-2013, 05:52 PM
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You Brother Jack ,

You are right I have been there my ol .45 tasted pretty good many times and no one ever knew I had thought about it or even got to that stage due to my condition . I had to work through it by myself I had to do what I did best shooting and teach my self to make knives (something I had always wanted to do ) I love shooting long rang and stacking the rounds on top of each other at 800 yds + and cutting down match sticks as well that takes concentration ( time that I had a lot of as I could do nothing else of ) I had to craw out to the range many times as my legs would not work many times and and would lay there for hours when done with my camel back with water in it pack that had my supplies in it ( I was too stubborn to ask for help and /or prideful) I created more turmoil and ciaos in my house then my family could handle really we all had to have counseling for it . I am doing a 1000% better and have the will to live I draw the inspiration from others work and design as well as seeing them fight too . I still have very bad days However not as I use too Life still goes on with or with out me I did learn this , However It is my family that will suffer from my actions so I trod along and function til the Good Lord Calls me Home .

Sam


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